Peggy Liou and Tenny Tsai: A Tale of two big-hearted friends (Part II)

Shared joy is a double joy, shared sorrow is half a sorrow.
– Swedish proverb

Volunteerism: An Integral part of their lives
Peggy Liou, 58, attributes her volunteerism to Tenny Tsai, 59. “She is the biggest hearted person I have ever met,” she said, of her good friend. “Once you start it [volunteerism], that’s it; there’s no turning back.” Liou worked full time outside of the home, raised her son and daughter, now 31 and 23, respectively, but still found time to volunteer her time to charitable organizations. The key to volunteerism for multi-tasking mothers, and really, anybody, according to Liou, is to “surround yourself with friends who are into giving back. It makes it fun – like a friends and family event.” Tsai would often call Liou to volunteer, and Liou joked, “You can’t say no to Tenny.”

The family-formed walk group for the Alzheimer's Association's Walk to End Alzheimer's, October 2012. (Photo courtesy of Tenny Tsai)

The family-formed walk group for the Alzheimer’s Association’s Walk to End Alzheimer’s, October 2012. (Photo courtesy of Tsai)

Liou’s daughter, Christina, who is Tsai’s goddaughter, recalled growing up participating in fundraising events that soon became annual family traditions. “It [volunteer work] was a part of our lives,” the elder Liou said. Every October, for example, the two families participate in the Self-Help for the Elderly‘s Golden Gate Walkathon and the Alzheimer’s Association’s Walk to End Alzheimer’s in San Francisco. The purpose of the walk is to raise people’s awareness and raise fund. In June, they attend the Self-Help for the Elderly’s annual Longevity Gala with family and friends, an annual event which raises between $400,000 and $500,000 to fund the nonprofit organization’s services. In the past, Liou has helped organize and provide the entertainment for the gala.

There are so many charitable organizations to support – from prevention and finding cures to diseases and environmental protection to elimination of hunger and homelessness locally, nationally, and globally – that choosing where to invest one’s time and energies can be daunting. The decision is made easy, according to Liou, when you choose “where your heart is.” In the last six years, since her daughter entered Stanford University, Liou became more involved in education for both the young and the elderly.

Self-Help for the Elderly fundraiser dinner: Tsai, Rosalyn Koo, Tsai's mother Tina, and Liou, June 2012. (Photo courtesy of Tsai)

Self-Help for the Elderly fundraiser dinner: Tsai, Rosalyn Koo, Tsai’s mother Tina, and Liou, June 2012. (Photo courtesy of Tsai)

Liou pointed out that the elderly rarely get much attention. Tsai, who was very close to her grandmother and was one of her main caregivers the last 10 years of her grandmother’s life, became passionate about issues around the elderly. Another good friend of hers introduced her to Self-Help for the Elderly when Tsai was asked to serve lunches to the elderly and drive the elderly participants for the walkathons. Gradually, Tsai became more involved and in a greater capacity. Around the time of her grandmother’s passing, Tsai was urged to join the board of the Alzheimer’s Association by a local committee member who said the organization needed an advocate who could speak on behalf of a more diverse community. Tsai served on the local board for seven years, following by eight years of service on the national board. Tsai’s passion and her commitment to the elderly were inherited by her daughter, Elisha Bonny, 29, Liou’s goddaughter, who is a nurse practitioner with a specialty in geriatrics.

Turning adversity into opportunity in order to give more
Just as Tsai’s life experiences informed her volunteerism, Liou’s triumph over breast cancer is leading her to new ways of giving. “Any harsh experience is a learning experience: I got cancer for a reason,” Liou said. Whereas last year’s goal was to recover and make three trips to China, her goal for this year is to “pick up a little more volunteer work” – as if she doesn’t have enough on her plate. Liou has been talking with cancer patients and is hoping to do more. She is especially keen to change the prevalent attitude among Asian patients who believe their cancer is a punishment from God for some transgression they had committed. “If I can share anything positive with people – that’s my calling,” she said.

After one of Liou's treatments, with Tsai and her son, Garrett, and Liou's daughter, Christina, 2011. (Photo courtesy of Tsai)

After one of Liou’s treatments, with Tsai and her son, Garrett, and Liou’s daughter, Christina, 2011. (Photo courtesy of Tsai)

Tsai can relate to Liou’s gift of feeling blessed. When Tsai’s grandmother passed away, she felt a void, which is common among primary caregivers. Tsai recalled going to her grandmother’s bedroom and staring at her empty bed, wondering if her own life was finished. When she began volunteering with the Alzheimer’s Association – visiting with elderly people and comforting family members of the elderly, and then participating in policy development and supporting research for cures – her own grief was lessened. “It was also a way to lessen people’s burden,” she said.

Friends, family, and faith
When Liou met her oncology doctor for the first time, he told her he could tell on the first visit which cancer patients had better recovery and survival rates. Studies have shown that chances are greater when the patient was healthy before contracting cancer (that the patient didn’t have other health conditions prior) and how many family and friends accompany the patient to treatments and doctor visits. Faith, family, and friends have been fueling Liou’s recovery. The “three F’s,” as Liou calls them, have always played important roles in both Liou’s and Tsai’s lives.

The three families went on vacations together. Tsai and Liou at Lake Tahoe, 1983. (Photo courtesy of Tsai)

The three families went on vacations together. Tsai and Liou at Lake Tahoe, 1983. (Photo courtesy of Tsai)

At the high-tech company where they met back in 1979, Tsai and Liou had befriended a coworker, Paul Roth, and the three formed a strong bond and friendship, which resulted in the three families taking vacations together. On walks at work, Tsai and Liou became the eyes for Roth, who had lost his sight at the age of 28 in a chemistry lab accident, by describing the physical world around them. At the same time, Roth helped them “see life more in-depth,” according to Tsai. Liou agreed, adding, “We helped him see with our eyes, but he helped us to see with the heart, to see things differently.” When Tsai and Liou came to Roth with their problems, he listened to them without passing judgment and in doing so helped them resolve their own issues through talking it out.

When Roth passed away in 2005, a small foundation was set up, and every year the Roth and Tsai children determine which organization will receive the donation. “It is a wonderful way for them to learn how to work together for a good cause,” Tsai said. The three families come together every year on the day of Roth’s passing, though Tsai points out that they celebrate his life by continuing to be involved with each other’s lives. Tsai and Liou have attended Roth’s two daughters’ and their children’s births, baptisms, and birthday parties, and the three families are planning a trip to Switzerland, Roth’s homeland, in 2014.

Faith intervened to preserve the two women’s friendship when Liou was first diagnosed and they clashed over what kind of treatment and which hospital to choose. With her college degree in clinical science and her understanding of the severity of the diagnosis, Tsai believed her friend should participate in clinical trials at the University of California at San Francisco. Liou, however, didn’t want to travel to San Francisco from her home in Los Altos, even though Tsai offered to drive her for every treatment, and instead opted for chemotherapy at El Camino Hospital. When Tsai found out, she cried, believing she was going to lose her friend. While Tsai admitted to being stubborn, Liou pointed out that Tsai merely wanted the best care for her good friend.

A smiling Liou after her second treatment, 2011. (Photo by Dee Lee)

A smiling Liou after her second treatment, 2011. (Photo by Dee Lee)

Unhappy with the decision, Tsai nevertheless accompanied Liou to her first round of chemotherapy. Tsai offered a prayer before treatment, holding hands with Liou’s husband, Leo, and daughter, Christina. When Tsai concluded the prayer, Liou’s oncology nurse responded behind them, saying, “I love Jesus, too.” Her response was a spiritual confirmation for Tsai, who said, of that moment, “I surrendered my will to God, and I realized our friendship really took me to a different level that I have to trust.” Tsai had to trust God and love Peggy, and in doing so, she had to trust her friend’s decision and let her live her own life. “If I love her and care for her, I have to totally accept that, whether I like it or not,” she said. Tsai believed that this trial strengthened their friendship and made Liou’s journey not just a medical journey but a spiritual journey.

“It’s a humbling experience,” Liou said, of all the prayers that family and friends offered on her behalf, and even the prayers of people she didn’t know from Tsai’s prayer group. Despite the difficult time, Tsai said, “There was a lot of joy around us.” Liou said she could feel the strength and the power of prayer that was offered before the “poison” was put into her body during treatments. “I could feel the energy,” Liou said. “God’s grace is there, ready for us to draw from,” Tsai said, though oftentimes it is blunted by human will and wisdom when it comes to wanting to make our own decisions. Tsai came to realize that the type of treatment or hospital didn’t really matter in the end; what mattered was trusting in God to take care of her good friend.

Looking forward to the future
Liou is currently fundraising for the American Cancer Society’s Relay for Life and volunteering her time at the American Cancer Society’s Discovery Shop (243 Main Street, Los Altos, CA 94022, 650. 949.0505). When Liou was undergoing treatment, Ruth Jeng, board chairperson and founder of PEACH Foundation, realized that “time doesn’t wait for anyone” and that she needed to do more so long as she was healthy. Acting on that revelation, in addition to the Chinese adage of “do good deeds” and the cultural responsibility of taking care of family, Jeng increased the quota for sponsorships from 400 students to 600 students in 2012 and raised 2013’s goal to 900 students. Liou worried about how the additional students would get funded, and then a sponsor from Taiwan, where an equivalent organization also operates, emerged. While Liou called it “a miracle,” she said, “It also confirms our belief in ‘just do it’ attitude.”

Alzheimer's Association's End Alzheimer's Walk in San Francisco: Elisha Bonny (Tsai's daughter), Tsai, Liou, and Christina (Liou's daughter), carrying photos of Tsai's grandmother, who died from Alzheimer's disease, October 2012. (Photo courtesy of Tsai)

Alzheimer’s Association’s End Alzheimer’s Walk in San Francisco: Elisha Bonny (Tsai’s daughter), Tsai, Liou, and Christina (Liou’s daughter), carrying photos of Tsai’s grandmother, who died from Alzheimer’s disease, October 2012. (Photo courtesy of Tsai)

Tsai, who turns 60 this year, has been pondering her “second life.” Tsai sees her profession as a commercial real estate broker not as a series of business transactions but as a ministry. She is currently searching for a daycare for a church that wants to provide this service to families in need. She continues to work with the elderly, ensuring that their dignity and quality of life remain intact. She finds the greatest satisfaction with one-on-one visits with the elderly, helping them through the last stage of their lives. Tsai tries to spend as much time with her parents, children, and friends, trying to carry out her maxim: “Live like there’s no tomorrow.” Sometimes, Tsai admits, she can be accused of doing too much – juggling career, family commitments, and volunteerism. That said, she is merely living out her philosophy of “do[ing] everything today.”

Tsai experienced a revelation after one of her high school friends recently died of ovarian cancer. Tsai’s visits over the duration of 10 months didn’t change the outcome. What changed, however, was making her friend’s life as well as her own life “more bearable” during those visits. It was difficult for Tsai to watch her friend suffer and to let her go. Despite the physical pain, Tsai’s friend found great comfort in their friendship and in having Tsai be there with her. “If I can be the little buffer or little agent to be there, other people make my life more acceptable,” Tsai said. “That’s what it’s all about.”

Back in July 2012, when Tsai was looking at the PEACH Foundation kids, she wondered how she was giving them hope. “It’s not the one hundred fifty dollars or two hundred fifty dollars a year,” she concluded. “It’s the touch you gave the kids, the hug, and you being there. That’s the crucial word – that you’re being there for them.” At the many crossroads in their lives, Tsai and Liou have been there for one another, holding one another’s hand, listening to each other’s problems and in their listening helping them sort out the issues and resolve the problems themselves. “That,” Tsai concluded, as Liou nodded and smiled, “is what a good friend is all about.”

Liou and Tsai in Los Altos, February 2013.

Liou and Tsai in Los Altos, February 2013.

Peggy Liou and Tenny Tsai: A Tale of two big-hearted friends (Part I)

It is prosperity that gives us friends, adversity that proves them.
– proverb

Peggy Liou and Tenny Tsai, in Los Altos, February 2013.

Peggy Liou and Tenny Tsai, in Los Altos, February 2013.

When Peggy Liou, 58, was diagnosed with Stage III, Triple-Negative Breast Cancer in December 2010, her friend Tenny Tsai, 59, accompanied her to nine of her 10 rounds of chemotherapy the following year. [The only round Tsai missed conflicted with her son’s graduation.] During her treatment, Tsai promised that she would accompany Liou to China on a volunteer mission once Liou recovered. In July 2012, the two close friends, who met as programmers for a Silicon Valley company in 1979, traveled to a poor, mountainous region in China, where Tsai encountered what she called a “life-changing” experience and Liou returned to the children who, she says passionately, needed her – and whom she needed.

‘Walking the walk’
Since 2001, Liou has been involved with the PEACH Foundation U.S.A., which stands for Promoting Education, Arts and Community Harvest. The Foster City, CA-based nonprofit organization’s main project is to help children from the poorer regions of China stay in school. In China, education is free up until middle school. Finishing middle school is a challenge for students in remote regions, however, because their families can’t afford the room and board. The PEACH Foundation sponsors economically disadvantaged students, but they have to be motivated to stay in school, Liou explained. Thus, students nominated by the local middle schools must be among the top 20 in their class. Sponsors donate 125 USD for middle school students and 250 USD for high school students. A sponsor for 10 years, Liou became more involved in 2006 – “walking the walk,” as she refers to it – by traveling to China three times a year to conduct interviews and home and school visits.

Volunteer teachers for the first session of the PEACH summer camp in Yunnan, China, July 2012. (Photo courtesy of Peggy Liou)

Volunteer teachers for the first session of the PEACH summer camp in Yunnan, China, July 2012. (Photo courtesy of Peggy Liou)

“We don’t just give them the money; we care about the kids,” Liou said, which distinguishes the PEACH Foundation from other organizations. Every summer, the foundation sends volunteers to China to teach in summer camps. “The purpose of the camp is to care for those kids,” she said, which includes developing self-esteem, something the children lack because of the stigma of their socio-economic standing. Liou, who translates the children’s autobiographies from Chinese to English to post on the organization’s website, said that many of their stories “break your heart.”

Liou and her students at the PEACH summer camp, Yunnan, China, July 2012. (Photo courtesy of Liou)

Liou and her students at the PEACH summer camp, Yunnan, China, July 2012. (Photo courtesy of Liou)

Liou recently translated the story of a girl who had started school at the age of seven but quit at age nine at her parents’ request when her father became very ill. While her mother took care of her father and the household, she was responsible for taking care of the family cow, which meant taking it to the mountains, even in inclement weather. “I couldn’t help but cry when I saw other children attending school because I wanted to go back to school so badly,” the girl had written. Within a span of four years, her father was hospitalized and underwent two surgeries. When her father’s health improved, he told her she could return to school, but she thought it was “too late” and that people would laugh at her for going back to third grade at the age of 13. She came to realize, however, that if she didn’t go back now she would never have that chance again. On her first day of school, she wrote how excited she was to return and resume her education. The girl, whom Liou called “brave,” is now in the ninth grade.

Changing lives and being changed
Students who are accepted attend a new student orientation in the summer, which is run by up to 40 volunteers from the U.S. and Taiwan per section, with 400 students in each section. The orientation packs English and Chinese language lessons, music, and other activities into nine-hour days. Tsai had been a sponsor for the PEACH Foundation for four years, but eschewed volunteering for the summer camps because it wasn’t her “cup of tea.” Although Liou had asked Tsai to join her a few times in the past, Liou noted that it was Tsai’s over-commitment to other volunteer activities that kept Tsai from going.

Teachers and parents mold their students for years and their children for a lifetime, respectively, Tsai said, but after the 10-day camp, volunteers come away having changed somebody’s life – as well as their own. “You build a relationship with them,” she said. While volunteers can’t solve the children’s life problems, Tsai pointed out that these children, who often have never had people care about them, experience the generosity of strangers who have come into and made a difference in their lives.

Tsai teaching her students at the PEACH summer camp, Yunnan, China, July 2012. (Photo courtesy of Liou)

Tsai teaching her students at the PEACH summer camp, Yunnan, China, July 2012. (Photo courtesy of Liou)

For Tsai, the experience also made her realize the tremendous scope and amount of work that Liou had accomplished in the last 10 years with the organization. “I was speechless,” she said. She also witnessed the tenacity and passion of her good friend when Liou badgered her doctors after each round of chemotherapy, wanting to know when she could return to the mountains of China. At first, Tsai was frustrated with Liou because they had discussed going to Europe when she recovered. With her lymph nodes removed as part of the treatment, Liou was advised against traveling and being in high elevations, but still she persisted. “Somebody else is up there!” Tsai scolded Liou, referring to other volunteers running the camp.

Tsai grew to understand and appreciate the bond Liou had developed with the children she knew and those she had yet to know. “It was almost the purpose, her goal for living,” Tsai said. In 2012, Liou participated in a cancer support group as she fought to recover. For her type of cancer, the recovery rate is two years and the survival rate is 50/50. “I’m the lucky 50 because I have a reason to live,” she said. “I have a mission waiting for me to do. I have kids who need me. They keep me going.” Liou said that the kids at the foundation saved her life, which motivated her to get well. “I have to do it; I have to go see them,” she added.

Liou spent 2012 recovering from her treatment and learning how to take care of herself and preparing herself for when – not if – the cancer comes back. “I’ve come alive again,” she said. When she wakes up every morning, Liou says she is grateful: “I learned how to live as if each day is a blessing.”

Editor’s note: Part II will be posted on Monday, March 25th.

Liou after her second round of chemotherapy, February 2011. (Photo by Dee Lee)

Liou after her second round of chemotherapy, February 2011. (Photo by Dee Lee)

My life in healthcare information technology

The most pleasurable thing in the world for me is to see something and then to translate how I see it.
– Ellsworth Kelly, American painter, sculptor, and printmaker

John, me, and Jack practicing our "author poses" for our book jackets, The Orange Grove, Syracuse University, May 1990.

John, me, and Jack practicing our “author poses” for our book jackets, The Orange Grove, Syracuse University, May 1990.

When I’m not blogging on weekends and weeknights, trying to work on my novel on vacation time, and being a mom, wife, chauffeur, cook, housekeeper, and errand runner, I write about healthcare information technology (IT). It is, as they say, my day job. I’ve been writing about this industry since 2003, when my good friend Jack from grad school co-founded his business-to-business publishing company and asked me to leverage my experience working for a major health insurance carrier to write about the IT that insurers deploy. I free-lanced for his company, interviewing and writing articles about an industry that was initially new to me, for the next seven years.In 2010, I joined the company, now a media company, full-time. The previous year I had worked on a big project for a major client of ours, writing numerous case studies and a lengthy executive summary. It was a baptism by fire, as I’d never done a project of this magnitude before and it was crossing from the familiar territory of editorial to the uncharted waters of marketing. We took on more projects of this nature, and I became the sole custom content writer for these special projects. I had moved over, as purists scornfully or jokingly say, to the “dark side.”

My company mugshot.

My company mugshot.

As journalists, your interviewees, PR people, marketers, and the like do not see what you’ve written until it’s published. The separation of church and state is protected and preserved. What I write, however, is edited, reviewed, and approved by as many as several departments. They are our customer, after all. On a high note, a well-known industry visionary from a major global company merely added one sentence to my white paper and told his marketing director that I was his new favorite writer. On a low note, I’ve had a client redline what I’ve written to the point of non-recognition – in other words, if I had a byline, it would have to be deleted because it was no longer mine. Sometimes, you just never know, which makes each project somewhat of a blank slate. It’s my way of living on the edge, professionally speaking.

Why healthcare IT is important to you and me
Pressure and uncertainty aside, I enjoy what I do. Healthcare IT is an important industry that touches everyone because we are all patients – most if not all of us have been in a hospital and gone to the doctor’s office. Two major pieces of legislation to come out of the Obama administration that impacts all of us is the American Recovery and Reinvestment Act (ARRA) of 2009 and the Patient Protection and Affordable Care Act, also known as Obamacare or the Affordable Care Act (ACA), of 2010. Within ARRA is the HITECH Act, which essentially contains a number of incentive programs for the adoption of healthcare IT, especially electronic health records (EHRs) and health information exchange. ACA includes provisions that are more easily achieved through the adoption of healthcare IT, which is by design.

My company's back East, and I'm out West. I work at home, which enables me to wear such things as vegan leather pants at my office.

My company’s back East, and I’m out West. I work at home, which enables me to wear such things as vegan leather pants at my office.

I have seen the shift in both my primary care physician’s office and my kids’ pediatrician’s office from paper records to electronic records. Our pediatricians carry around their tablets and enjoy pulling up apps with their stylus pens. Gone are the shelves upon shelves of paper records in file folders. It is disruptive technology, for sure. EHRs were originally developed as a documentation tool so physicians could properly bill for the services they rendered in the traditional fee-for-service, or fee for volume, reimbursement world. Today, we are asking EHRs to document care, aggregate relevant patient information, and deliver the right information to the right clinician at the right time in order to improve the quality of care, clinical outcomes, and patient safety in a more streamlined, cost-effective manner. (We are also trying to shift to a pay-for-quality reimbursement model.) There are naysayers who want to eliminate EHRs and all healthcare IT because they are expensive, disrupt clinician workflow, create more work, and don’t do what they claim they will do. Privacy watchdogs warn of greater risk of data breaches. The technology has to continue to be re-engineered and vendors have to develop robust, reliable, and user-friendly technology (not just sell a bunch of software licenses that lock healthcare providers into long contracts with bad technology that clinicians don’t want to adopt). And policy has to continue to be refined so as to protect patient information.

A plum-colored sweater gets a boost with a Missoni scarf and bold Pam Hiran necklace (Anthropologie).

A plum-colored sweater gets a boost with a Missoni scarf and bold Pam Hiran necklace (Anthropologie).

We are getting there. It’s a painful growing process. Legislation was put into place to speed the inevitable. The healthcare industry is woefully behind, if you look at how the banking and financial services and retail industries have embraced technology. Consumers will demand it in healthcare. They are already demanding to communicate with their healthcare providers across various channels of their choice and wanting to interact in a way that is more convenient for them. According to the Pew Internet Project, 45 percent of American adults have smartphones. According to an industry survey, 53 percent of clinicians use smartphones and 47 percent use tablets in their healthcare work environment. Medical schools are incorporating healthcare IT into their curriculum. So, really, it’s only a matter of time before we achieve the same state of IT adoption that we enjoy in other industries. And it’s only a matter of time before you can be in another part of the country far from home, end up unconscious in the emergency room, and the physician who is treating you can pull up your EHR, see what medications you’re taking, what allergies you have, and what other health conditions you have, and therefore know what medications he or she can or cannot give you based on that critical information. That’s why I take pride in what I write. This is important stuff. Admittedly, some topics are more engaging than others. Vendor neutral archive, anyone? But my job is to make the topic engaging. My job is to entice healthcare executives, managers, and clinicians to read what I write. Whether writing fiction or nonfiction, a short story or chapter in a novel, or a blog or case study or white paper, I have one goal: To find the narrative and tell the story in a clear, concise, and engaging way.

I work at my home office, but I still dress up as a way to be disciplined and to take myself seriously while working.

I work at my home office, but I still dress up as a way to be disciplined and to take myself seriously while working.

Cocktail party topics
In my research, I learn so many things. For example, RAND Health reported that approximately 133 million Americans had a least one chronic illness in 2005, which is astounding to me. According to the Center for Disease Control and Prevention, every year, chronic disease, which includes cancer, diabetes, heart disease, and stroke, causes 70 percent of deaths in the U.S. and comprises approximately 75 percent of medical care spend. Our healthcare costs comprised 17.9 percent of our Gross Domestic Product (GDP) in 2012, and it’s expected to climb to 18.4 percent of GDP in 2017. And yet, up to 80 percent of chronic diseases can be prevented – mostly with lifestyle changes. The solution is both simple yet exceedingly difficult.Here are more interesting data. Did you know that persons aged 65 years or older numbered 39.6 million in 2009, which is 12.9 percent of the U.S. population or one in every eight Americans? By 2030, the number will grow to approximately 72.1 million older persons, or 19 percent of the population. The proportion of the global population over the age of 60 is projected to double from approximately 11 percent to 22 percent – from 605 million to 2 billion – between 2000 and 2050, according to the World Health Organization. Imagine the implications on our societies and economies to have countries with inverted pyramid populations?

Fun accessories complement the sequined birds.

Fun accessories complement the sequined birds.

In the U.S. we haven’t yet figured out how we are going to build a sustainable healthcare delivery system that will allow us to “age in place,” or grow old at home and not in an institutional setting. We have to look to other models in other countries. In Hong Kong, for example, instead of dispersing more funds to care for dependent citizens, the government is adding incentives to the same allocation of money if the patients’ functionality – which is the operative word – improves. We need to identify and support necessary enabling technologies to ensure a person’s maximum functionality so he or she can live productively within the community. Evidence exists that enabling an older person to stay at home saves money. Global aging, therefore, should be approached as both an opportunity for business and for improving the quality of life, rather than just a challenge or a burden, advocates argue. Now that’s exciting stuff to me, especially as I grow older.Writing about these challenges and paradigm shifts and potential technological solutions and visionary policies is an intellectual exercise for my brain. I’m learning so much; you could even call me a SME (subject matter expert), which is what I call my interviewees, in a number of topics. I have also had the opportunity to hone my presentation skills in webinars and before groups of healthcare professionals. Would I rather be writing novels and blogging? No doubt. But I’ve become a more thoughtful and careful writer and I have a better eye as an editor of my own writing through my industry writing through the years. I just need to clone me thrice to get everything done – something healthcare IT unfortunately can’t do. For that, we would have to turn to science fiction….

Have fun mixing black and white graphics. Throw in Carmela Rose vintage Lucite earrings, clear chunky bracelet etched with fun words from Anthropologie, MoMA 3D ring made of plastic (NYC), ruffled booties, skinny patent belt, and glossy red book bag from the Fickle Bag (Berkeley, CA).

Have fun mixing black and white graphics. Throw in Carmela Rose vintage Lucite earrings, clear chunky bracelet etched with fun words from Anthropologie, MoMA 3D ring made of plastic (NYC), ruffled booties, skinny patent belt, and glossy red book bag from the Fickle Bag (Berkeley, CA).

Serenity now: Acupuncture for the weary

Take rest; a field that has rested gives a bountiful crop.
– Ovid, Roman poet

The New Year started out with a bang work-wise. I found out I was going on a five-city business trip within a two-week span and more projects poured in on top of the projects I was already working on. I woke up early Sunday morning with a panic attack, wondering how I was going to meet my deadlines before I board my plane Friday night. Three weeks after returning from the holidays, I’m a train wreck.

Take time to examine and enjoy the kaleidoscope details of a tulip (from our garden).

Take time to examine and enjoy the kaleidoscope details of a tulip (from our garden).

My neck pain has flared. Sitting in a chair for hours has produced sharp pain in my lower back and my sciatica has resurfaced. I’m currently sporting braces on both arms for carpal tunnel syndrome. Yes, a train wreck. I’m thankfully not pulling all-nighters because frankly I can’t stay up like I used to (and shouldn’t have back then, in my younger and more vulnerable years). But the downside is that I simply don’t have enough time to finish what I need to get done.

I had it on my to-do list to call my acupuncturist before my red-eye flight. But I couldn’t carve out the time, I argued with myself. I’m glad the sensible part of me won. Late this afternoon, I went in and, lying on the table in a heated room, with soft music soothing my downtrodden soul, I was at rest and gathering strength.

Appreciate the beauty of nature in the delicate orchid.

Appreciate the beauty of nature in the delicate orchid.

I first saw Portia Lee, my acupuncturist, last April. I’d always wanted to try acupuncture for various aches and pains, particularly my sciatica. But last April I was suffering from insomnia. I could not sleep no matter what I did – warm baths, power down from electronics (maybe I tried that once) an hour before going to bed, reading, deep breathing. Nothing worked. It got to the point where I was terrified of going to bed because I knew it was going to be another night of tossing and turning, and then unbelievable exhaustion the following day. After talking with a few friends and relatives, I discovered that this is symptom of the changes. The insomnia went on for a few weeks before I succumbed to going to my nurse practitioner.

Did I want to do a trial and error with sleeping pills or anti-anxiety pills? She suggested the latter because anxiety often creates insomnia. I just want to sleep, I demanded. We tried sleeping pills. That lasted two nights. They made me groggy and exhausted. There was really no difference between the problem and the cure. So I decided to try acupuncture, and I ventured to Portia’s practice, Traditional Ways Healing Center (6931 Stockton Avenue, El Cerrito, CA 94530, 799.8788, infoportialee@gmail.com), after looking her up on the Internet.

Get up close and admire the fluted petals of an orange dahlia (from our garden).

Get up close and admire the fluted petals of an orange dahlia (from our garden).

I’ve never had such a thorough examination and discussion of my physical, emotional and mental well-being. It was eye-opening for me to talk about things that were impacting my body. I was in her office for three hours. I fell asleep on the table. Who wouldn’t when you have a lavender eye pillow, a comfortable pad and pillow, incense and soft music setting the mood, and a just-so warm room? All my troubles were outside that door. I left with some bottles of herbs and roots, and as I was walking out, I noticed the lack of pain in my left leg. It was a lightness that occurs when a pain you’ve accepted and lived with all these years has been suddenly lifted. I was able to sleep immediately with valerian, though I actually haven’t used it for several months now. I’ve had a couple of acupuncture tune-ups since then, mostly when my stress levels have risen – like now.

I still have to make it to the end of the week, intact and with as much work done as I can possibly do. My body has been energized by acupuncture. I just have to be kind to my body to keep going. And take a deep breath. You can only do what you can do. The world won’t collapse over a missed deadline.

Someone once said, “Serenity is not freedom from the storm, but peace amid the storm.” As I tackle the next deadline, I do so with a more balanced body. Now to nurture that peace in my head.

Keeping it simple with the LBD - a silk shift embellished with crystals and baubles at the shoulders. Instead of a red purse or pumps, throw a dash of color with the unexpected red gloves.

Keeping it simple with the LBD – a silk shift embellished with crystals and baubles at the shoulders. Instead of a red purse or pumps, throw a dash of color with the unexpected red gloves.

Vintage Eisenberg bracelet and earrings to adorn the LBD.

Vintage Eisenberg bracelet and earrings to adorn the LBD.

Red-and-black gloves for the LBD, co-starring with g bling and some Eisenberg bling and some bling on the shoulders, too.

Red-and-black gloves for the LBD, co-starring with g bling and some Eisenberg bling and some bling on the shoulders, too.

 

Engaging with grace

Life is pleasant. Death is peaceful. It’s the transition that’s troublesome.
– Isaac Asimov, American science fiction writer and biochemistry professor

Mixing black and gray for the holidays, 2011.

Mixing black and gray for the holidays, 2011.

My mother’s passing still haunts me one year later. It is what I had expected. But last week, a number of events have kept me thinking about the other side. A good friend let me know that her elderly mother had been very sick and in the hospital for three days. She is thankfully recovering now in her assisted living facility. Another good friend texted me that a mutual friend, whom I hadn’t seen in a few years, was in the ICU, having suffered congestive heart failure and a stroke. And last Wednesday, as I was running an errand, I saw the result of an accident that must have happened mere minutes before I turned on the corner – a covered body on the street, an inconsolable woman standing on the sidewalk, and police cars redirecting traffic. The wail of a fire truck siren followed soon afterwards.

These events made me think about how things can twist and turn in a blink and take you down a different, sometimes dark, path – thoughts that seem to be especially prevalent as the years march on. Can we really ever be prepared for such tragedies?

Anatomy of black and gray: one o my favorite faux fur jackets, suede booties, and statement necklace from Anthropologie.

Anatomy of black and gray: one o my favorite faux fur jackets, suede booties, and statement necklace from Anthropologie.

In the fall of 2008, I attended the Health 2.0 conference in San Francisco as a reporter for my work. I wanted to cut out before the end of the first day of the conference, but something compelled me to stay for the last presentation. Alexandra Drane, founder and president of Eliza, began talking about her sister-in-law, who at the age of 32 was diagnosed with stage IV glioblastoma. I won’t tell you the rest of the story. You can read it and watch it here. Alexandra shared this poignant story amid many tears in the audience – both men and women, including the young mother who was sitting at my table. Alexandra helped found a viral movement, a nonprofit organization called Engage with Grace, which entreats us as family members and friends, with great humanity and love, to discuss end-of-life care. She asked that we answer the five questions brought up on the website, download the slide and share the story, and “get the conversation started.”

I was incredibly fortunate two years later to actually interview Alexandra at the same conference. I excitedly told her how moved I was by her presentation. Then I told her about my father’s passing, and how he died in his hospital room while we were on our way. I had always regretted – and I know my mother did, too – that he was alone. I told her that after his death, my sisters and I tried to talk to her about planning for her own passing, but she would hear none of it. It was bad luck to talk of such things. So that was the end of it. I then told her that after hearing her presentation, I brought it up to my mother the next time I visited her. (Little did I know that four years earlier, in 2004, she had written out her wishes for end-of-life determination. To this day, I don’t know what triggered her to decide what to do and to write it down, but I am grateful that she did.) Again, I was met with a rebuke for talking about such matters out in the open. That was the end of the discussion.

A very cold Northern California winter, January 2013.

A very cold Northern California winter, January 2013.

I also told Alexandra that after the conference, when I returned home that evening, I sat down and wrote about the presentation and the movement and send out a group e-mail to all my women friends. David and I filled out our advanced healthcare directive and dutifully sent it out to family members and our physicians. We and our family know what we want to do should we find ourselves in that difficult position.

But whereas advanced healthcare directive maps out what you do or don’t want to have done to you, there is no place on the form that asks you where you want to be when your life is coming to an end. It should. I recognize, however, that even if it did, their wishes may not be fulfilled.

My mother wanted to go home. She couldn’t really talk, but she mouthed it. It was plain to hear through the garble. It was obvious in the shape of her chapped lips. At first, my sisters and I thought she meant she wanted to go home to recover, not recover in the hospital. My sister, whom she lived with, brightly told her she needed to regain her strength before she could come home and, as an incentive, kept encouraging her to do her physical therapy, which my mother refused to do when the therapist came to her room. (My mother would look away, disinterested, and play opossum, but the moment a Filipino caregiver came into her room, she smiled, nodded her head, and weakly waved.) As my mother encountered setback after setback, I realized that she wanted to go home to die. She was done fighting, she was tired, she had told us as much with her eyes and her distorted speech, and she had nodded when we asked her, though we were not ready to let go.

When I was alone with her, on my watch, she told me again she wanted to go home, as if I was her only hope. I awkwardly asked my sister to grant her wish. My sister gave various reasons why it was not a good idea to bring her home. And then remembering Engage with Grace, I asked both of my sisters to watch the video and to consider the message. My sister finally responded. She respected the message, but she could not bring herself to do it. I was sad, but I totally understood where she was coming from. It was her home. It was her decision, not mine.

In the end, it was she whose stoicism failed her the night we let our mother go, not I – the “crybaby” of the family when we were growing up. It was she whose voice broke when we each eulogized our mother at her memorial service. And it was she who has to wake up every morning and go to bed at night in the house in which my mother would no longer walk in and out – her bedroom door, closed and white, which my sister would have to face coming in from the garage, like a canker sore on the heart.

If only we had discussed the matter when we weren’t in such a difficult situation. Maybe the outcome would not have changed at all. I don’t know. And in not knowing, and while still haunted, I can only spread the word. Engage with grace. There is great comfort in knowing what your loved one wishes and that there is time to prepare to honor their wishes.

Engage with grace. Amen.

Keeping the winter chill away with faux fur jacket and scarf (Restoration Hardware) and leather (Frye booties) and warm gold (necklace and bracelet by M.E. Moore and Monserat De Lucca crossbody bag).

Keeping the winter chill away with faux fur jacket and scarf (Restoration Hardware) and leather (Frye booties) and warm gold (necklace and bracelet by M.E. Moore and Monserat De Lucca crossbody bag).

Fare thee well, chai latte

Drink your tea slowly and reverently, as if it is the axis on which the world earth revolves – slowly, evenly, without rushing toward the future. Live the actual moment. Only this moment is life.
– Thich Nat Hahn, Vietnamese Zen Buddhist monk, teacher, author, poet, and peace activist

A perfectly formal outfit for high tea.

A perfectly formal outfit for high tea.

This morning I drank my last tall mug of chai latte with soy milk. I can’t tell you how many mornings I sat down at my home office desk after walking the kids to school and relished sipping the slightly spicy drink with the hint of ginger on my tongue. It set me in a calm and clear frame of mind, ready for the work day.I drank the real chai many years ago at the Community of Writers at Squaw Valley conference, where one of my housemates, who was East Indian, brewed it fresh. There is nothing like waking up to the aroma of cinnamon, cloves, and especially grated ginger. I was sold on chai and its explosion and marriage of flavors, but nothing off the shelf matched what I savored and I didn’t have time in the mornings to make my own.

Years later, I began drinking chai latte because of the ginger. When I was suffering from morning sickness my first trimester with my daughter, my mother-in-law recommended that I eat crystalized ginger. That particular preparation of ginger didn’t alleviate my nausea, but one morning on my commute to work I dragged myself to the Starbucks near my BART station exit and ordered a chai latte with soy milk – being lactose intolerant – hoping that the ginger in the mix would help. The moment I took my first sip my nausea literally disappeared. It happened the next morning and the next. Once I got past the second trimester, however, I stopped buying it because I couldn’t bring myself to pay that much for a drink.

Black and white and sparkly, mixing vintage rhinestone jewelry with Tiffany sterling silver mesh jewelry.

Black and white and sparkly, mixing vintage rhinestone jewelry with Tiffany sterling silver mesh jewelry.

But then I found the Tazo chai latte mix in Costco. I was in heaven until they stopped stocking it. When I found it on the shelves again one winter, I bought cases of it to last a year. When I ran out and there were none to be found at Costco, I discovered that Target carried it and I resumed my habit. Through the years, there have been mornings when I thought the chai latte didn’t taste as good as I always expected it to be. And, being disappointed, I thought, yes, I could give it up.I have found that as I get older, I have had to consider food from a different perspective. Food is now viewed as what does or doesn’t impede a healthy digestive system. And more recently, what foods to avoid that age your skin – sugar, caffeine, and alcohol are culprits that are often named in articles about nutrition and aging. And yet, I couldn’t give up the thing that was part of my morning routine. Some days I wasn’t enamored with the flavors and other days it tasted so good I was crazy to consider banishing it from my diet. Until your body tells you that something you’re consuming is making you feel off.

Time for casual tea in a Tocca coat from Personal Pizazz (Berkeley, CA).

Time for casual tea in a Tocca coat from Personal Pizazz (Berkeley, CA).

Unwilling to give up my chai lattes, I replaced soy milk with almond milk, upon recommendation by women friends after discussions about how soy milk is hard on the digestive system. (In a month-long experiment, I have discovered that having eliminated soy milk from my diet made a difference in that area. I’m not well versed enough about the pros and cons of soy, but from what little I’ve read the literature points to unfermented, genetically modified soy as being unhealthful.) No matter what brand I tried, however, I did not like the taste of almond milk and it didn’t blend well when heated with the chai latte mix. It was either watery or coagulating, which made it seem easy – finally – to give it all up. So not only was I going to have a healthy digestive system, I was also going to do my skin a favor (because I am not going to give up my vino so it had to be something else) and not feel like I had to relinquish anything I enjoyed.

Chunky ring from Lava 9 (Berkeley, CA), Carmela Rose vintage brass earrings, Sundance rings, and J. Crew necklace.

Chunky ring from Lava 9 (Berkeley, CA), Carmela Rose vintage brass earrings, Sundance rings, and J. Crew necklace.

The thing about giving up something is that you need to replace it, even after the love has waned. I’m sure behavioral studies have been conducted on the success of replacing a habit with something else just as or even more enticing or enjoyable. I used to hold up my hands in a “no, thank you” gesture to the Teavana people handing out samples outside their storefront. When my cousin Janet was in town last summer, we tried several cups, and I was hooked by the explosion of flavors. But wait, there’s more. The tea has less caffeine than my chai latte mix and the white and green teas are rich in antioxidants. White teas are the least processed of all teas, the Teavana person informed me. Yes, she was selling me her product, but the flavor and aroma sold me – along with texture, those are the three things that I most appreciate in food. And I loved the fact that there were so many different flavors and fruity versions – and chocolate – and that I could mix to create my own special blends. I had found my replacement.

Mixing textures: Nubby chenille turtleneck, Tocca herringbone tweed coat (Personal Pizazz), faux leather and knit leggings, chocolate leather booties, and warm brass jewelry.

Mixing textures: Nubby chenille turtleneck, Tocca herringbone tweed coat (Personal Pizazz), faux leather and knit leggings, chocolate leather booties, and warm brass jewelry.

But I had to go through my stockpile of chai latte cartons, which surprisingly has taken a number of months to consume. I suffered through the almond milk in my chai lattes, until I broke down and bought a half-gallon of soy milk this week, which was a mistake. The last drop from the last chai latte mix carton was emptied this morning. I hesitated before throwing the carton in the trashcan. Later this morning, there was just a hint of longing as I looked into the deep well of my empty mug.

Tomorrow morning, I’ll be mixing wild orange blossom herbal tea leaves with youthberry white tea leaves. I will drink my tea slowly and reverently. And feel cleansed.